Sometimes the best advice comes from the people who are furthest removed from the situation so I guess where better to ask.

Apologies in advance if this is a bit deep. 

A ‘what would you do in my shoes’ type question…

My grandmother died young from MND. My mother has Frontotemporal Dementia (diagnosed at 61). Both of these are linked to a gene mutation that there’s a 50% chance that I may have inherited. 

If I have, there’s a rather increased chance that I could develop either (or both) by the time I’m 60 (half way there this year). In short, it’s fucked my head up. 

Now I can get tested to confirm whether or not I’ve inherited it but the question is whether or not you’d want that. 

Do you live in blissful ignorance and when your time comes, it comes? Or do you get the test and there’s a 50% chance you’re negative or if you are positive, your heads potentially even more fucked?

But then on the other hand, you’ve got a place in line for any preventative treatments that may be developed in the future…

There’s also the fact you can find out if any theoretical child you may have can be tested during pregnancy to determine if they’ve inherited it from you (with the option to not continue with it).

Apologies again, I know it’s a deep one, just appreciate an impartial view. Heads flitting from one way to the other on an hourly basis.

5 minutes ago, Spider said:

I can confidently write a daily horoscope that predicts a gruesome death for capricorns and I’ll be correct.

Please let it be me.

10 minutes ago, Traf said:

Please let it be me.

That made me laugh out loud.

But I genuinely hope you are OK 👍 

3 hours ago, gonzo said:

No worries pal x

 

Mad how she knew though. Its put me off going to see one.

Spooky as all that caper.

I saw a tarot reader in new Orleans 

It's all nonsense 

But what I was shown by the cards fit perfectly with where I was in my life and what I had to do next

And looking back they were right

Or more to the point the cards were dealt perfectly 

Certainly more accurate than Russell Grant ever was in the paper

Who had that happy medium photo a few years ago? 😂

I’ve thought it through… I know what I’d do bud, ultimately hope you’re ok

11 hours ago, Winchester White said:

That made me laugh out loud.

But I genuinely hope you are OK 👍 

comme ci, comme ça, mon ami

Generally fine, but often have days wondering about the futility of it all.

Christ. 

I don't doubt that everyone who commented on this last February will have completely forgotten that they had an input but I'd just like you all to know that your words really did (and do) mean a lot and have helped more than you know. A full course of Cognitive Behavioral Therapy, a number of counselling sessions and countless physio and sports massage sessions (every time I convinced myself that pins and needles in my arms/hands/legs/foot etc. was the onset of MND) over the last 13 months and I've finally got to the point where I had a blood sample taken for this yesterday.

Results in 6 weeks time. Here's hoping for the best. Expecting the worst but hey ho. 

Thank you all.

Edited March 14, 20251 yr by matty2094

On 16/02/2024 at 09:01, Traf said:

comme ci, comme ça, mon ami

Generally fine, but often have days wondering about the futility of it all.

I still feel this way 13 months on, even more than then if truth be told.

8 hours ago, Traf said:

I still feel this way 13 months on, even more than then if truth be told.

Keep yer pecker up pal. There is so much to enjoy.

7 minutes ago, bolty58 said:

Keep yer pecker up pal. There is so much to enjoy.

I'm OK, mate.

9 hours ago, Traf said:

I still feel this way 13 months on, even more than then if truth be told.

You know where I am if you need a talk big man

16 hours ago, tomski said:

You know where I am if you need a talk big man

I'm all good, mate, but post-season beers?

5 hours ago, Traf said:

I'm all good, mate, but post-season beers?

Oh no. I’d hate that. See you there

On 14/03/2025 at 17:53, matty2094 said:

Christ. 

I don't doubt that everyone who commented on this last February will have completely forgotten that they had an input but I'd just like you all to know that your words really did (and do) mean a lot and have helped more than you know. A full course of Cognitive Behavioral Therapy, a number of counselling sessions and countless physio and sports massage sessions (every time I convinced myself that pins and needles in my arms/hands/legs/foot etc. was the onset of MND) over the last 13 months and I've finally got to the point where I had a blood sample taken for this yesterday.

Results in 6 weeks time. Here's hoping for the best. Expecting the worst but hey ho. 

Thank you all.

After all that, 14 months of stress, anxiety, therapy and probably a couple of bouts of depression too I got good news on Thursday. 

As I said above, you might not have realised it but your inputs definitely had a baring on the decision to get the test done. I actually referred back to this thread every couple of months to reassure myself I was making the right decision.

Time to start living again rather than just existing.

Thank you everyone.

Good news pal. All the best going forward.

Quality!

Enjoy it.

Brilliant news

Right in time for the summer months as well

Great news Matty. Enjoy the summer with no football to fuck you off.

Superb news!!

57 minutes ago, matty2094 said:

After all that, 14 months of stress, anxiety, therapy and probably a couple of bouts of depression too I got good news on Thursday. 

As I said above, you might not have realised it but your inputs definitely had a baring on the decision to get the test done. I actually referred back to this thread every couple of months to reassure myself I was making the right decision.

Time to start living again rather than just existing.

Thank you everyone.

Yes matty lad 👍👍

Well done Matty. Onwards and upwards mate.

Great to hear this news lad