My condition has worsened over the past 18 months, I now cannot walk and have lost the use of my right arm and hand, no more bird houses to be made, in constant pain and I know depression is creeping in, I am at Salford Royal for 2 days a month for a 4 hour infusion, this is for the foreseeable future. Same as others I have a very large drink (Vodka and lemonade) every night which means I get about 4 -5 hours sleep. I have had adaptations made in the house which again is depressing, (the grandkids love the stairlift), my only pleasure now is Monday Club (pitch and toss night) and Thursday club when we put the world to rights, 3 pints is my limit because there is no disabled toilet in my local. I keep my season ticket but this coming season I have to go pitchside because I cannot get up the few steps to where my daughter and kids sit, I have had to stop going away matches as I hate being a burden to anyone. i will talk to someone eventually, just not ready yet.